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Post prednisone

Polymyalgia Rheumatica (PMR) | Last Active: Jun 1 8:36pm | Replies (53)

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@hunib33

@dadcue. I’m happy for you that splitting doses worked. We’re all trying to find what works best. I’m convinced that hitting PMR hard the first 8 days or so minimized all the bouncing around with tapering. And apparently that was your experience too with your eye condition. Good health to you!

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Replies to "@dadcue. I’m happy for you that splitting doses worked. We’re all trying to find what works..."

Yes ... uveitis provided me with the unique experience which allowed me to visualize the inflammation inside my eye. It would start with black dots called "floaters." It would rapidly progress to black and white specks which looked like "salt and pepper." Eventually the white specks would turn into a "white fog" that became so dense I wouldn't be able to see my hand in front of my face.

My ophthalmologist could also look inside my eye. He would quiz me about whether or not the inflammation was getting better or worse. He would then do his own assessment and observed the inflammation inside my eye himself. He was impressed that my assessment was always the same as his assessment.

The options given to me were either "better" or "worse." One time I couldn't decide so I said the inflammation stayed "the same" as before." My ophthalmologist was astonished but had to agree the inflammation stayed the same as a couple of days before.

Every flare of uveitis was different. All flares of uveitis were classified as "urgent" by my ophthalmologist meaning I needed to be seen right away. However, I sometimes classified my uveitis flare as "wimpy" as compared to "aggressive."