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Thank you for this contribution. I’ve been looking for someone with my experience and yours is about identical. Finished prednisone last November, 2023 and same body experiences. Up and down but flexible compared with full on PMR. Stiff upper legs and hips waning faster and mostly gone. Stiff upper arms and shoulders a bit more persistent but I can tell it’s moving in the right direction. If I do too much one day because I’m feeling great, the next day I am utterly stonked! I swim daily and have some physio exercises for my arms. Patience….
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hi @cazwell50 can i get your input about 1) what time of day did you take your lower and lower doses ? 2) did you {ever} split the dose ?
oopsy i forgot to mention above that i now i am still splitting dose 2mg in morning and 3 mg in evening -but i want to move it from 4-5pm to 7pm.
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@cazwell50. I understand completely the stage you’re in. I’m still in that stage to some extent—if I overdue exercise one day it’s as though my body punishes me the next day with pain. So it’s a balancing act and most of the time I get it right, but then I’ll overdue it assuming I’m further along with healing that I actually am. My body quickly reminds me. 😅 Oh well. Patience.