Connect
Comment receiving replies
O-M-G !! I just responded to a different conversation with this comment that i highlighted from this paper , which mentions PMR quite a few times -
- " When discussing glucocorticoid taper- ing, patients should be counselled about the possibility of withdrawal symptoms. "
So shannon - i'm with you entirelyy on what you stated above !! I just moved an apt with rheumatologist few weeks earlier and intended to discuss that !
So - @shannonjp, @hunib33 and @lungranger77 could you tell me 1) if you were doing a split dose and 2) what time of day did you take your lower and lower doses of Prednisone ?
I have a new physical therapist who has really focused into the difficulties that prednsione tapering could present for the plan of care . Are terms such as "glucocorticoid withdrawal" and/or steroid induced myopathy to be used only after a specific Dx ? And-FYI- i also have a history of lumbar issues and my PCP and i are wondering if i could have "meralgia parestheitica " -- has anyone ever heard of this ?
I am concluding that in the MASS GENERAL Brigham system the type of coordination among doctors is not as i expected it to be . I bet you all are happy to be rid of PMR and ( albeit) low doses of Prednisone ( and need for rheumatologist?) HA!
Replies to "O-M-G !! I just responded to a different conversation with this comment that i highlighted from..."
Hello @nyxygirl .
I've not split doses so far. I do notice mild, classic PMR symptoms occasionally, usually related to the exertion the day before or the first week or so on the new lower dose-which I guess could be considered mild withdrawl? I always take my meds between 7-8am. I also break a 500 mg tylenol in half and take that as well.
Best wishes on your progress.
Ernie
Connect
I didn’t split my dose either. I tried it once when I was taking ~12 mgs because the morning pain was difficult for me but that didn’t work. Then I tried taking my dose in the evening and that helped more with the morning pain. I’m fortunate that it never caused sleep issues and I took it several hours before bed to avoid GI problems.