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Weaning off of prednisone & pain management

Polymyalgia Rheumatica (PMR) | Last Active: Oct 25 10:23am | Replies (156)

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@mikeydee

For me, I found dropping by 0.25mg prednisone every 6 days worked after I had several flares when I tried to go below 9mg. To do this I became a good pill splitter using a pill cutter found at the pharmacy and 5mg and 1mg pills. Even at 0.25mg per day I found the prednisone still had a considerable effect on masking pain and discomfort. My prednisone ended on Dec 31 2023. Since then I have had ups and downs with pain mainly in the nerve area. It was like my nerve endings had to wake up and work again. Pain here...pain there... but only lasted for a few days in each location, Weather seemed to play a significant role in the pain level and aches. Walking and exercise thru the day really helped to lessen the morning aches and day stiffness. Feet and knee neuropathy is still my main issue along with minor joint/muscle aches.
I have learned..."Keep moving!!!!!! They don't keep race horses in the barn. Its move or the glue factory!!"
Mike

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Replies to "For me, I found dropping by 0.25mg prednisone every 6 days worked after I had several..."

I never thought of only dropping 0.25 mg Prednisone every 6 days. Is this something you did on your own that worked for you or did your doctor recommend this? This is an excellent idea!

I'm sorry that you are having pain in the nerve areas and aches. This is a terrible disease that is so unpredictable from day to day. I have been keeping myself very busy until yesterday when I started with chills and a sore throat. I took Airborne and feeling better today. I plan to relax the rest of the day, but tomorrow it's back to taking care of the kids, dogs, house, working, etc.

I loved your final comment. Well, I'm not in as good of shape as a race horse unfortunately, but I'm too young to go to the glue factory. So I will take your sincere words of advice, I'll "Keep moving"! Thank you for responding to my questions and for all your input.