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Small cell carcinoma of the bladder (SCCB): anyone else?

Cancer | Last Active: Feb 26 4:12pm | Replies (51)

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@loribmt

Good morning, Richard. Pfhew. I’m glad to hear you’re back home. Hospital food isn’t the best. 😅 Sounds like you have a good plan with your doctor now for taking prophylactic antibiotics with the scopes. That should really help you out. Not sure if you’re a yogurt eater or not, but when you’re taking antibiotics it can help the guts to stay happy if you have a cup of yogurt a few hours before or after your pills. Activia yogurt works well. I was on 2 antibiotics for a several years and yogurt was the key to keeping my intestines healthy.
I’m sorry you’re having such a hassle with Medicare! Their coverage is always such a mystery to me! A few years ago during my recovery period from my transplant, I needed daily infusions of magnesium. I wasn’t able to take oral meds yet so I needed the infusions. They were hugely expensive and took 2.5 hours daily or 5 hours every other day in the infusion center at Mayo. The clinic was great in letting me know there was an option for doing the infusion at home (in my hotel room) for much less $$ and they’d set me up with that system. I was willing to do that myself but Medicare wouldn’t cover it!
Your blood results should show your need for IVIG antibodies given your current immune compromised state. Plus it’s not something a doctor suggests lightly so the need is there!
I’ll keep my fingers crossed for you in hopes this gets cleared! Sending a hug! And drink more water! 😅

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Replies to "Good morning, Richard. Pfhew. I’m glad to hear you’re back home. Hospital food isn’t the best...."

Hi Lori, thanks for the helpful information and the suggestions on ameliorating antibodies. I seem to have a good tolerance to them, no effects from them.

I'm pleased to say that Medicare has approved my IVIG infusions. I found antibody vaccine data from a couple of years ago which I forwarded to my heme/onc. She sent it to Medicare this a.m. and apparently they concur with her determination that I need IVIG infusions despite having Smoldering Myeloma. A small victory but I'll take it.