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Small cell carcinoma of the bladder (SCCB): anyone else?

Cancer | Last Active: Feb 26 4:12pm | Replies (51)

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@richardab

Hi Lori, yes, I was in for 2 days, out since last Wednesday and all seems okay on that front. I'll start taking antibodies prior to and following future cystoscopies, which I'll have quarterly for the next 2 years to prevent future UTIs. Fighting it out with Medicare, trying to get IVIG infusions for low immunoglobulins approved (I have Smoldering Myeloma) but they're resisting, it's a quite expensive treatment. They cited their medical reasons for rejecting treatments; I've given my hematologist/oncologist blood test results as evidence my antibodies are pretty shot. Thank you for your concern, it means a lot.

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Replies to "Hi Lori, yes, I was in for 2 days, out since last Wednesday and all seems..."

Good morning, Richard. Pfhew. I’m glad to hear you’re back home. Hospital food isn’t the best. 😅 Sounds like you have a good plan with your doctor now for taking prophylactic antibiotics with the scopes. That should really help you out. Not sure if you’re a yogurt eater or not, but when you’re taking antibiotics it can help the guts to stay happy if you have a cup of yogurt a few hours before or after your pills. Activia yogurt works well. I was on 2 antibiotics for a several years and yogurt was the key to keeping my intestines healthy.
I’m sorry you’re having such a hassle with Medicare! Their coverage is always such a mystery to me! A few years ago during my recovery period from my transplant, I needed daily infusions of magnesium. I wasn’t able to take oral meds yet so I needed the infusions. They were hugely expensive and took 2.5 hours daily or 5 hours every other day in the infusion center at Mayo. The clinic was great in letting me know there was an option for doing the infusion at home (in my hotel room) for much less $$ and they’d set me up with that system. I was willing to do that myself but Medicare wouldn’t cover it!
Your blood results should show your need for IVIG antibodies given your current immune compromised state. Plus it’s not something a doctor suggests lightly so the need is there!
I’ll keep my fingers crossed for you in hopes this gets cleared! Sending a hug! And drink more water! 😅