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birad 3 again?

Breast Cancer | Last Active: Feb 26 8:53pm | Replies (20)

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@sandyjr

I do not know where you are located, but the radiologist made a mistake twice on my MRI and I did had invasive cancer and I did get a biopsy. Something showed up on my mamo and I immediately made an appointment with the surgeon who had done the lumpectomy on my first breast cancer. He immediately gave me a script for an MRI. That came back ok, but come back in 6 months, which I did and again everything was ok. I loved my surgeon and I told him I couldn’t live with worrying and wanted a biopsy. He had no problem with that and I had the biopsy within a week and I had invasive ductal carcinoma. This was in the opposite breast from the first cancer. I had another lumpectomy in the second breast.
Needless to say, by this time I was losing my mind. This breast surgeon called me several times to see how I was doing. He knew my mental state was not good. I would be driving and he would call and I would pull over and talk to him. He was very kind and never rushed me on these conversations. I had tried to communicate with the radiologist and he would not get back to me. My advice to you is to find another oncologist and radiologist. My belief is that my cancer had been properly diagnosed with the first MRI it would not have been invasive. As far as oncologists go, the first one I had with this second occurrence would not give me anything for my mental state and told me to take Xanax and that my problem was that I chose not to pay out of pocket to go to the therapist in their practice. Excuse me, but why should I drive an hour and pay out of pocket when I had wonderful insurance and there were plenty of therapists I could have gone to locally. How dare he?! I fired him and went to another oncologist in a different practice. When I asked her questions, she literally ran out of the room. She was associated with a large hospital system and cancer center. By this time, I was pretty frantic. I am trying to save my own life and running into road blocks everywhere. In any event, I marched across the street from the cancer center to the hospital attached and threw a fit. The head of the cancer center got called in and was NOT happy. She was not truthful about what happened and was not even trying to be helpful. I wasn’t going anywhere until this was straightened out and the hospital person could see that and finally I ended up with the chief of oncology at this hospital system. He is wonderful and kind and answers all of my questions. There are good doctors out there. They are just hard to find. I am not trying to scare you, but I have found that you are just a number and money for them. How many people do they see in a day? Do not feel bad if you decide to move on to new doctors. They will not miss you. You have to be your own advocate. Good luck.

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Replies to "I do not know where you are located, but the radiologist made a mistake twice on..."

Wow -that is so much to go through. i am not worried about moving onto something else - another doctor or clinic - i agree with you that i'm just a number to them. The issue is that here (i'm in Toronto, Ontario) almost every specialty, one has to be referred by their family doctor. The challenge for me will be convincing my family doctor to refer me elsewhere - though i get along with him and he's been my family doctor for awhile, he can be dismissive at times. I have spent the day doing research on different breast care clinics in the city and trying to find one i'd be comfortable going to - i feel if i come "armed" with where i want a referral to, he may be more likely to do it...at least i hope so. And even if he does refer me to another clinic, they can refuse the referral if they feel that Princess Margaret Hospital did an adequate job. Thank you so much for taking the time to reply to me. you didn't scare me at all but really highlighted why i have to be my own advocate.