@emo - that's where I'm at as well - seronegative, but with some overlapping symptoms not necessarily associated with Spondyloarthropathy. I have relentless back, hip and sometimes shoulder pain. May I ask what you're on for it and whether you feel it's working? I have tried Humira, Enbrel, Rinvoq, Orencia, Rituxan, and Cosentyx infusions, but I have never been able to get off steroids successfully without a severe flare (I take Medrol every day). My rheumatologist just suggested I try Remicade as it has more flexibility in dosing (up to 4 times the initial dose) and there is flexibility in how it's given (it's supposed to be every 8 weeks, but the infusion can be every 6 or 4 weeks). I'm hoping this is the one, but then again I hope every one is "the one!" I'm not ready to give up just yet, but I am running out of options.

I was going to say that it's hard to believe you were misdiagnosed at Mayo, but it's not really all that hard to believe as it took 25 years to figure out that the root cause of my back pain was inflammatory. I saw countless orthopedics, spine specialists, chiropractors, physiatrists, and physical therapists during that time, and every one of them misdiagnosed my crippling back pain. So many of these autoimmune diseases mimic something else or don't show up on blood work so it makes it that much harder to get treatment. I hope you are feeling well and your symptoms are being managed. I would love to hear if you have any other suggestions that you feel have worked well for you.

Best, Pauline 🙂