Connect
← Return to CEA up - guessing not good
Discussion
Comment receiving replies
She has her first treatment of folfiri 10 days ago. First few days were good, then horrible diarrhea and lots of pain. Had to get an upgraded prescription of morphine as she had the worst pain she has ever had in her life. Get bloodwork tomorrow and will see what the numbers are. There are just so many side effects from these treatments that put them through hell.
Replies to "She has her first treatment of folfiri 10 days ago. First few days were good, then..."
I've been on folfiri for five months. The irinotecan is known for causing diarrhea. The nurses told me the nickname is "I run to can". I use a combination of Lomotil (a prescription drug) and Imodium to control it. The nurses give me atropine before they begin the irinotecan infusion. That controls the diarrhea for about three days for me while I am wearing the infusion pump for the Flourouracil. The day I have the pump removed I begin the lomotil and Imodium combination. If I start having loose stools I take additional Imodium. I hope that helps.
Connect
I feel for you both, I hope she gets some relief from the pain. Sending 💗