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I was recently diagnosed with Bronchiectasis.
MAC & Bronchiectasis | Last Active: Nov 19 7:40pm | Replies (181)Comment receiving replies
@beatitnow Hi! This disease is rare and there is really nothing specific to treat it. Maybe Amikacin...but it is relatively new. I have heard that most people that take the big 3 only keep the disease at bay..and after they stop it starts to progress. That has happened to me. My Doc has had me on random courses of Clarithromycin just to calm down flares. Not a good way to live.
I did research on the bacteria, and of course the bacteria is stuck in the bronchiectasis pockets. The bacteria is supposed to have a hard outer shell making it hard to get anything inside and kill it. Also, the way the bronchiectasis is spread throughout the lungs, the blood supply doesn't really get into that damaged tissue. So drugs in your bloodstream are not very effective and..the inhaled kind is not always going to get in those pockets.It's just a frustrating situation!!!! My ID doc wanted to put me on IV Amikacin but I was not happy about that at all. I'd rather at least try the inhaled kind.
As far as vitamins..some are water soluable. So your body flushes them out pretty quickly when you pee.That's probably why Katherine said to take every 4 hours. Some are fat soluable and those will stay in longer.
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@gaylewroc...Hi! Thank you for your responses.
I am doing the nebulize glutathione also. Do you inhale through mouthpiece or a mask? I don't feel anything when my glutathione hits my mouth. I am wondering if my prescription is off, or if I am not doing something right. I remember in Dan's book he says that his bubbled over the first couple times. I have no idea what could be bubbling. I just pour the pre-proportion vial into the machine with like .3% saline solution. Can you tell me what you do? Also, are you seeing Dr. Daenell, the Denver naturopath that Dan saw? I am.
Also, as far as taking the vitamins, Kate had mentioned taking them 4 hours apart from the antibiotics. I have not been doing that and I wondered if that could have been affecting the potency of the antibiotics? Also, my doctor said it was okay for me to drink coffee in the morning when I took my Rifampin, so I have been. What I didn't realize until a couple weeks ago, is that I was putting coconut milk in my coffee, and I probably should have been having it black so it didn't interfere with the antibiotics. Do you have any thoughts on that?