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Peripheral Hyper sensitization Neuropathy

Neuropathy | Last Active: Feb 29, 2024 | Replies (8)

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@reno10

Yeppers it’s a real thing.
Last summer I lost consciousness many times because of the heat.
When I come to I am very disoriented & confused.
One time I was on my way to a doctors appointment. I started feeling very dizzy lightheaded. I felt like I was going to pass out so I pulled over into an empty parking lot and I did just that almost 8 hours later I woke up it was dark out, I had no idea where I was I was very confused it was frightening.
Nothing like this has ever happened to me before, I have always loved the summers.
When I have these blackouts, it can be just seconds or minutes or hours.
I am an avid reader and researcher. I do not own a TV. There is a lot of information on the different types of neuropathies..but not much on Peripheral Hyper sensitization
On top of having Peripheral Neuropathy & Hyper Sensitization,
I also have Crohn’s disease.
I’m not sure if they are related I can’t find that answer either.
But I did find one time that Crohn’s disease can cause these types of neuropathy’s
Thanks so much for your information
Every little bit helps

Take care

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Replies to "Yeppers it’s a real thing. Last summer I lost consciousness many times because of the heat...."

Thanks for sharing. Well, I learned something new or learned a new term for something similar to what I experience! My symptoms are not as severe as you, but I do experience temperature, light, and sound sensitivity.

I’m a patient at the #1 rehabilitation hospital in the world (they like to say this in all their marketing) so they do a lot of research on chronic pain syndromes like this. They use something called a “continuum of pain mechanisms,” and the information you and John shared sounds a lot like one of the pain mechanisms on their continuum (the recommended treatment per my care team is very similar to what I described, so perhaps the post he referenced could be helpful).

I agree; it’s maddening there’s not much literature/resources on it. I hope you’re able to find some relief. It takes a lot of trial and error, but I’m wishing you all the best.