← Return to CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

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@kirbyukat

I’ve recently been diagnosed with CIDP through nerve conduction tests, EMG and lumbar puncture. The lumbar puncture demonstrated high normal levels of protein. Is this consistent with CIDP. Symptoms began in 10/23. Thank you

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Replies to "I’ve recently been diagnosed with CIDP through nerve conduction tests, EMG and lumbar puncture. The lumbar..."

Welcome @kirbyukat, I have small fiber PN but haven't had the lumbar puncture but I did find this information that might provide some answers.

"Approximately 90 % of patients with CIDP demonstrate elevated CSF protein (greater than 45 mg/dL) (62-64). CSF pleocytosis is not typically seen, and often suggests a co-infection, such as HIV (65)."
--- Chronic Inflammatory Demyelinating Polyradiculoneuropathy: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4845954/

Have you started any treatments?

That is a question for a good neurologist to answer. He would have to rule out that you didn’t have one of several other diseases like lupus, MS, etc before a final diagnosis through blood tests an also check for small cell neuropathy or fine nerve in your skin issue with biopsies, you need a professional. Bottom line is you have Autoimmune disease disease and you have come down with one of the 15 or so diseases that come with to about 15 million American l believe probably because of genetic tinkering in human vaccinations.

My NM doctor was going to do a tap but decided not to, to wait. It is good to be armed with information. I suppose the are going to do one now with worsening symptoms that expanded.

I hope you find the answers you seek. It is good you have some answers.

What are they doing for you?