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← Return to Glioblastoma: My husband's journey, what's yours?
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Glioblastoma: My husband's journey, what's yours?
Brain Tumor | Last Active: Mar 30 7:01am | Replies (20)Comment receiving replies
I too have a spouse diagnosed October 23. Surgery, followed by three weeks of oral chemo and radiation. Then after a month off went to five days of oral chemo a month for six months. After two rounds of this, it was determined the chemo wasn’t really working anymore. He is 82 and does not have the chemo receptor. They have now switched him to an Avastin antibody infusion every 14 days to hopefully stem the growth and provide relief from his symptoms, fatigue, headaches and brain fog. Anyone have experience with this ? Also, curious if anyone is using a social worker from Mayo and what sort of help that person can provide.
Replies to "I too have a spouse diagnosed October 23. Surgery, followed by three weeks of oral chemo..."
Good question, @una. Oncology social workers can offer many different services. It is an often overlooked service. You may find this blog post, written by the Mayo Clinc oncology social work team, helpful to learn more
- How an Oncology Social Worker Can Help https://connect.mayoclinic.org/blog/cancer-education-center/newsfeed-post/how-an-oncology-social-worker-can-help/
I also want to invite you and your husband to join the monthly support group hosted by a Mayo Clinic social worker if you haven't already. They are online on Zoom the first Tuesday of the month. The next one is on March 5. See more info and how to register here:
- Brain Tumor Support Group - Compass Connect https://connect.mayoclinic.org/event/brain-tumor-support-group-compass-connect-2/
How is your husband doing on Avastin?
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Does notice trouble staying on task…focuses on a written calendar to help with schedule. But overall trying to enjoy what he can do. Next MRI is March 7th.