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I was recently diagnosed with Bronchiectasis.

MAC & Bronchiectasis | Last Active: 1 hour ago | Replies (177)

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@beatitnow

@colleenyoung and the Rest of the Group!

Hi, my name is Amy. I am currently 48 years old. I have been on the 3 big antibiotics (Clarithromycin, Ethambutol, Rifampin) for almost two years now. My last sputum sample was Dec 19th, 2018 and I was just told that it was positive again. I was wondering if anyone else has done anything if there meds were not helping? I was very interested in what @lauralynn said about her clinical trials where she cleared her NTM after 6 years, plus of being on meds. Does anyone know what drug she inhaled, or any other drug to inhale that will help this go away? I also may need to look to switch my doctors. I live in Caseyville, Illinios, outside of St. Louis by 30 minutes. Thank you for any help anyone is able to give.

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Replies to "@colleenyoung and the Rest of the Group! Hi, my name is Amy. I am currently 48..."

@beatitnow Hi Amy, I was on the big 3 for 2 years, 3 days a week with no results. My dr changed me to daily big 3 and inhaled Amakacin and it worked to close my cavities and get rid of the nodules, but some nodules have returned after stopping the Amakacin. Good luck