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Weaning off of prednisone & pain management

Polymyalgia Rheumatica (PMR) | Last Active: Oct 25 10:23am | Replies (156)

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@emo

Hi there- So sorry for the pain…12 out of 10, yikes.

You may want to consider tapering your dose more slowly. The lower your dose gets, if you keep dropping down by the same amount, it’s still taking up a larger percentage of your total dose.

My dad was right about where you are when he had a huge flare. He has to go back up to the increased dose for a few more weeks to get back to baseline pain, then he dropped down to 6.25 mg (because we had 2.5 mg pills and he took 1.5 of those pills). Eventually, he got down to 5 mg, but he’s been at that dose since last December due to some health issues that may or may not be pushing up his ESR.

In reading about others’ experiences, it sounds like the lower the dose, the more challenging it can get to taper.

You’re reporting a lot of pain though, so I think it’s with considering slowing the taper after you can get the pain calmed down and/or talking to your doctor. I know it’s not ideal, but I just try to remind myself it’s about quality of life, not speed. Wishing you all the best.

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Replies to "Hi there- So sorry for the pain…12 out of 10, yikes. You may want to consider..."

Thank you so much for your feedback. It is greatly appreciated! I will definitely be mentioning to my doctor how much pain I have had, and inquire/recommending about tapering slowly. You are absolutely right. This is not a race, it's about quality of life. It took me 3 1/2 years to get a diagnosis of PMR. I think I can wait another 1/2 year or more to taper slowly off the Prednisone, especially if the outcome will be so much better. Thanks again!