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DiscussionPeripheral Hyper sensitization Neuropathy
Neuropathy | Last Active: Feb 29 3:22pm | Replies (8)Comment receiving replies
Replies to "Did you receive a diagnosis of “Peripheral Hyper sensitization Neuropathy”? Or do you mean that you..."
Yeppers it’s a real thing.
Last summer I lost consciousness many times because of the heat.
When I come to I am very disoriented & confused.
One time I was on my way to a doctors appointment. I started feeling very dizzy lightheaded. I felt like I was going to pass out so I pulled over into an empty parking lot and I did just that almost 8 hours later I woke up it was dark out, I had no idea where I was I was very confused it was frightening.
Nothing like this has ever happened to me before, I have always loved the summers.
When I have these blackouts, it can be just seconds or minutes or hours.
I am an avid reader and researcher. I do not own a TV. There is a lot of information on the different types of neuropathies..but not much on Peripheral Hyper sensitization
On top of having Peripheral Neuropathy & Hyper Sensitization,
I also have Crohn’s disease.
I’m not sure if they are related I can’t find that answer either.
But I did find one time that Crohn’s disease can cause these types of neuropathy’s
Thanks so much for your information
Every little bit helps
Take care
Bravo, bravo @emo - you have single handedly explained Central Sensitization Syndrome (CSS) to @reno10 (and all who read this conversation) so well. How helpful to folks like I once was who are trying to navigate odd, unusual, confusing and most likely - undiagnosed symptoms. Thank you @johnbishop for inviting me to the conversation.
Being a graduate of Mayo Clinic's 3 week Pain Rehabilitation Center program, I first and foremost always want to share Dr. Sletten's valuable video for clarity on CSS.
Dr. Sletten - Central Sensitization Syndrome:
As @emo mentions, the PRC is not for everyone, but that doesn't mean you can't watch and learn. Self advocacy and knowledge is powerful - especially when doctors may be unaware of diagnoses that does not get derived from a test, scan or blood work.
Reno10 - neuropathies and Central sensitization among other diagnosis can be a mixed bag with mitigating circumstances to understand, let alone manage . Sometimes having a clear understanding of the "why behind the what" helps create a plan for management going forward.
How are you feeling? Has learning about CSS and the effects it can have on symptoms you experience such as heat intolerance, helped you feel closer to understanding what you experience? Do you feel that CSS resonates with your situation?
Ugh, I wish there was a way to edit posts. I meant to say: “Ever since I was diagnosed in 2017, I have NOT found a great online resource to describe either the condition or treatment as I’ve experienced it with my physical therapists.”