I’m so sorry for your pain D. It is good you have a doctor who is prescribing it.

I can relate to what you have said. Hold onto hope.faith and family. Sometimes I feel that is all that is saving me. Being that this is Lent, I’m paying particular attention to the suffering He endured…it helps me…

Relating to pain and it puts it in perspective to know there is always someone who is suffering more and I appreciate that it isn’t as bad as it could be.

There are times of course this is challenged with predictably unpredictable crippling pain. It happens and passes and repeats when I least expect it. The worst pains yet have been lasting longer. It is pure agony. I cry out. At those times there’s nothing I can think about except IT.

When I’m in pain, I embrace it in that I allow myself to feel all the feelings that come with pain BUT when it ends for a time I release all that angst. I try my hardest to keep myself in the positive.

I try to think and do the things that bring joy, comfort, contentment and practice the things I am passionate about when the body is willing. Do what I can when I can.

I’m where you are. I am trying to get a firm dx to get appropriate therapies, if they are out there. In the meantime I must (I have no choice) hold onto hope, that there is help out there. If it’s not found with one therapy, I will try and try again. What choice do we have? We can’t give up.

I hope you have relief and therapies that help you.

❤️