Hello @gig666 and welcome to the NETs support group on Mayo Connect. I am glad that you found this forum. NETs/carcinoids is still considered a rare cancer diagnosis and it is important to find a place where you can meet others who are traveling on this same path.
On Connect, we have several NETs discussion groups for people with lung carcinoids. I would encourage you to read about their experiences and to ask questions in these discussions. Here ais a link to one of those discussions:
--Anyone Had Surgery to Remove Typical Carcinoids of the Lung
https://connect.mayoclinic.org/discussion/typical-carcinoids/
Here you will meet @californiazebra and @pattirushing. If you click on "Reply" under one of their posts, you can then ask them questions and discuss your own situation more fully.
One of the most important things when dealing with NETs is to have at least one consultation with a NET specialist. These are oncologists who have special training with NETs. They are your very best resource. They can help you develop the best treatment plan.
Mayo Clinic has three locations where NET specialists are available. If you would like an in-person or virtual consultation, here is a link to appointment information: http://mayocl.in/1mtmR63.
If for any reason you cannot be seen at a Mayo facility, here is list of NET specialists worldwide. The U.S. specialists are listed first, by state:
--Find a Doctor
https://www.carcinoid.org/for-patients/treatment/find-a-doctor/
Have you had any symptoms of coughing, wheezing, etc.?
Yes to all, flushing also, extreme bouts Diarrhea with mucous. Itching of skin, all problems had since 6/23.
The cough l blamed on my civic 4 times, wheezing l have blamed on GERD. Last night my chest was very tight. My Oncologist for a blood issue, said my lungs show thickning, hard to get a normal deep breath.