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@tsch

So my daughter, in 2012 got very sick returning from Belize, and lived in Florida at the time. I dont remember how she was diagnosed, but she was a patient of a well known researcher for awhile, Nancy Klimas. There are illnesses triggered by serious vial infections and I think this was one. They did alot of blood tests, but really it was her fatigue that probably nailed it. She was given various meds, one of which damaged her vagus nerve and led to gastroporesis. I remember in 2016 she was forced to spend time laying on floor, having no energy. Today she works from home, and is much better, altho she has ongoing muscle pain I believe. I think she once contacted Mayo and was rejected for an appointment. The most you can do I think is pace yourself. There is more research now fortunately, but no real medical treatment. It is not in your head as is frequently intimated. Do try to have a positive mindset and allow time to recover.

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Replies to "So my daughter, in 2012 got very sick returning from Belize, and lived in Florida at..."

Thank you so much for this information, and for sharing your daughter's story. I am familiar with Nancy Klimas, I had even considered trying to see her; if possible. Your daughter is so fortunate to have been able to meet with her. Were the meds that damaged your daughter's vagal nerve ones she took for her viral illness? They weren't prescribed by Dr. Klimas; correct? Thank you for your validation, so many people think it's some "made-up" illness. I wish it was. I know this may be a long shot–but I'm desperate at this point ... do you think your daughter would communicate with me via email? I would just like to hear more about her experience, compare symptoms, and what has helped her. I've lost years now, and finding someone who isn't trying to sell me something, etc.. to talk with hasn't been easy. Thank you again, I really appreciate it!