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I was recently diagnosed with Bronchiectasis.

MAC & Bronchiectasis | Last Active: 15 hours ago | Replies (177)

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@mmteach

Thanks for your reply, I am not sure what to do at this point as I only have 1 small section on each side of my lung that they say is bronchiectasis. My lung function was almost normal, and I am doing another CAT scan. Besides trying to build up my immunity with garlic and tumeric pills, I was told to come back in 4-6 months. I am not coughing at all, never really did. Should I just maintain a healthy diet, exercise and building up my immunity? go to mayo clinic? wait till I get an actual infection? I am waiting for the results of my alpha-? blood test, too. Thanks for any help you can throw my way. Mary

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Replies to "Thanks for your reply, I am not sure what to do at this point as I..."

@mmteach Hello and welcome to our group! I agree with @lauralynn in checking with your Dr about lung clearance support. I was diagnosed with MAC and bronchiectasis last year. My Dr at Mayo seemed to think that my bronchiectasis could possibly date back to childhood. Both of my issues are mild so there is nothing to do but monitor them at this time. It sounds like you are at the initial point in diagnostics but also that you might have a mild case also with no symptoms. The things that my Dr wants me to do are to be sure my acid reflux is under control as it can aspirate into the lungs. (be sure that you do not have silent acid reflux and are not aware of it) Also to keep healthy (I keep a clean diet and do supplements to reinforce my immune system) I am to follow up yearly with an xray and sputum to stay on top of my situation and do airway clearance. (nebulize saline and usage of an acapella when I feel gunky) He suggests having an antibiotic on hand (one that is not one of the big 3) for any flare ups. And Excercise! So far, so good. Hope you stay healthy and your diagnosis does not present a problem for you. You sound like you have a concerned Doctor! Best wishes....Kate

@mtmteach, I am happy to hear that you are catching this disease in the early stages. Your dr is right, avoid ill people, and wash your hands immediately after being in public places to avoid picking up germs that cause colds and flues. AVOID hot tubs, and indoor swimming pools! They can be loaded with mac. Wish I had known that. We had a hot tub for years and were in it every night.....pretty sure that is where I got my mac infection. I wish my drs that diagnosed with bronchiectasis many years back had said "Don't get into hot tubs", but they didn't.