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Want to connect with people Diagnosed with Crohn's at an older age
Digestive Health | Last Active: 6 hours ago | Replies (17)Comment receiving replies
I have learn recently when I was signing up to a trial research for new medication for Crohns that this disease also cause join pain , and lots of other parts of your body .
My gastro is excellent suggesting other meds and the last one was Rinvoq because I am very sensitive to side effects after my 3rd bottle I was recommended to stop , my doctor was disappointed but I could tell the difference no urgencies , no diarrhea, and last January 23rd I went to full colonoscopy which confirmed what I had in my heart my Crohns was finally quiet , and I am no longer taking any medication at all .
My life was upside down wi the Crohns stress was at high level which makes even worse for the disease.
I am a true believer that JESUS can and will heal so after lots of prayers , tears to be delivered from I have finally at terms that my prayers and decision to change my lifestyle, letting go of things that isn’t important in life , taking different approaches to daily activities etc caring for my 97 years old mother , my husband 87 , so at 65 I am feeling good about my changes and blessings.
Last Saturday I began to bleed a lot which results in 2 trips to ER and end up at hospital until yesterday after my gastro that was at the hospital required just a sigmoidoscopy confirmed again my Crohns is just well as could be , and my bleeding stoped and was caused by diverticulitis but I am home recovering.
So I would recommend talk to your doctor about this medication and give a try , Remicade infusions was very good at the beginning as well .
Please check your emotional health and make changes on the outlook of life what is more important, food is another thing to watch which triggers your Crohns , I was recommended by Crohns NP to take Vitamin D3 , B12 and gummies multi vitamins forever thing due to where my Crohns is and lack of nutrition enough in my body through food intake .
Out lives is very important we are the only ones that can make changes I did I am very happy .
Hope the best and don’t allow the disease to take over your life ! Luci .
Replies to "I have learn recently when I was signing up to a trial research for new medication..."
Luci,
Please don’t kill me for my complete and utter incompetence and trying to send you a message. I wanted to just thank you for your kind message. You sent me and I screwed up and sent it to myself. I tried everything. Nothing I did worked so I took pictures of it and sent it that way. So sorry I’m so sorry.
Thanks again take care
Hope you will be able to find a good caring doctor soon .
Luci
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Thank you very much for your thoughtful reply. Even though I don’t have a support system to speak of, I am not sad, nor have depression..what I do feel is more anger at all the doctors, and all the trips to the ER, and was told it was all in my head that there was nothing wrong with me. Well, I knew there was something very wrong with me, and I don’t understand how a person could be so sick and looks so sick and actually have diarrhea on the bed in the ER three times, and the ER doctor told me my diarrhea was my imagination, And I should go to Walmart and buy Pepto-Bismol. Because my diarrhea he says that is my imagination will be gone in a couple days. I said well I’ve had it for over six months now. Then he told me well. Walmart has everything the hospital has on their shelves.
So I told him we’re done here. I got myself cleaned up and dressed, walking out of ER room. He stops me at the door and says I would like to get a stool sample from you.. I said great. My imaginary diarrhea is right there on that very uncomfortable cot you had me lay on for 3 1/2 hours, so help yourself.
Another doctor I saw at the same healthcare facility (Kadlec) tri-Cities, Washington, says to me did you just make all that up to impress me?
I could not believe all the strange, unprofessional and ignorant things all these 7 doctors said to me! I lived in Seattle for 35 years. I didn’t go to the doctor very often I never have but when I did, I have never been treated like that by a doctor before in my life until I came here to the Tri-Cities Washington state.
The strangest thing about this healthcare facility and hospital of Kadlec, they would not help me at all.
But then I started getting phone calls from them. They wanted to give me a blood transfusion. That really bothered me. I didn’t need a blood transfusion for any reason whatsoever. They kept trying to talk me into agreeing to sign their papers of having a blood transfusion. I said you people wanna give me a blood transfusion, but you will not help me with diarrhea or pain that I’m having that makes no sense at all. This bothered me and I sent them to their administration, office, that Absolutely no way is any doctor or any healthcare person affiliated with Kadlec is ever allowed to touch me in any way, shape or form, even if I am unconscious I told them I do not trust you people there’s something very very wrong with you! You make no sense! I absolutely refuse treatment from Kadlec medical center.
But what I have learned about my crohn’s disease, is I trust when my body craves something as far as food goes.. foods I never really cared for or ate before, I am now eating and they taste good to me.
Also, the things they say, you should avoid, don’t bother me. I also know Crohn’s is different for everybody. So you pretty much have to use your own good judgment and common sense.
Again, thank you for your input and information, I look forward to learning more from you and others as well!
Take care,
God bless