← Return to Apheresis or ivig treatment for long covid?

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@emo

Just sharing my experience with exploring IVIG: I’ve looked into IVIG for FGFR3 positive small fiber neuropathy (and I also now have long COVID), but it’s considered experimental so at the time I was told it was extremely difficult to get it covered by insurance. It’s also an expensive treatment, so my doctor said it pretty much always requires an appeal. I didn’t end up pursuing it. Most academic medical centers provide IVIG because it’s a treatment for other conditions, but finding a physician to order it and getting it cleared by insurance seems the barrier.

I’m not sure if that’s also the case with long COVID, but I’m suspecting it would be similar.

What symptoms are you trying to address?

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Replies to "Just sharing my experience with exploring IVIG: I’ve looked into IVIG for FGFR3 positive small fiber..."

Cognitive issues and fatigue. I actually was able to get IVIG several months ago, but it had no effect. Thanks for your info and good luck to you!