What great comments! And so true.
Somedays are just too much... those are my "Pajama Days". Nothing will be gained by overreaching g those achy bones or muscles.
I've been on this road for 5 decades(ooo I just counted, yikes); this road is a long one, often with great potholes! I feel for you who are at the beginning, as this is the most distressing time... no diagnosis, medications are challenging, friends are going through their own 'shock and horror' at you and the future presents as a scary prospect! What to do!
This sounds corny, but your whole life is different now, so you might as well develop a new direction. Learning a whole new way of living starts by taking inventory on' is this and that really so important anyway'? Our 'modern' North American way of life is not helpful when it comes to changing priorities! We all have heard the saying, slow down and smell the roses... but when you come.e to a screeching halt... nothing smells very good!
We are pumped to get a good job, accumulate neat stuff, and go,go go.
When one becomes ill, all of that means nothing. I think it is true that the first few months (years for some) are the worst as you change your universe to meet your new needs and reality.
Appreciating the small / tiny things sounds trite but true. Yes, terribly hard when stuck in a body that is betraying you every minute. If you are very fortunate, you will go through and into this new life with the support of friends and family. But support is what you must find!!
Make a 'circle' of supportive people, in person or online. You will find good shoulders to lean on, and ears to scream into! Which is very helpful!
Also, become your own best advocate. Learn all you can about your illness &/or related illnesses. In this way you will be able to ask good questions and understand what you are being told. Build a great medical team: doctors, physiotherapists, etc.
The beginning is the most difficult.
Oh... and when you are told you are strong... ask them what they mean.. how are you strong? The answers are quite surprising. You will learn that you really are strong.... especially when you don't feel it!
I have found Connect very helpful.
All the best to you in navigating through your 'brave new world'.