Osteoporosis medications and neuropathy

Posted by detc @detc, Feb 19 7:34am

Has anyone developed neuropathy after taking Actonel or other osteoporosis medications? I was diagnosed with Covid vaccine induced neuropathy and I’m wondering if my robust, over active immune system may respond in the same way to osteoporosis medications.

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ann707 | @ann707 | Feb 23 8:37am

Has anyone who already has PN take any osteoporosis drug find an increase of their PN symptoms?

rnlorena | @rnlorena | Feb 24 10:32am

@detc I am curious about what you have posted. How did they diagnose you with Covid vaccine induced neuropathy? I had my first two Covid shots in January 2021. I retired the very beginning in March 2021 and woke up two days later with full onset pinpricks. So I have small nerve fiber no known cause. That was within the time frame for reaction. The other issue that you brought up about osteoporosis meds. I started taking a med that I know caused osteopenia. I was told that it could and it did. I am working to lose weight so I can stop that medication forever. I will be looking to see about any answers regarding this. @rnlorena

detc | @detc | Feb 24 11:57am

In reply to @rnlorena "@detc I am curious about what you have posted. How did they diagnose you with Covid..." + (show)

My diagnosis was “highly suspicious of vaccine induced neuropathy”. This occurred after my first Covid booster. Originally, I had a very extreme rash response to the first Covid shot. After the booster, neuropathy symptoms began to appear. Because of my particular health history which was excellent, the robust reaction to the first shot, the timing after the booster and the fact that other patients had been coming in and presenting just as I had, my neurologist felt that there was reason to believe that the neuropathy was related to the vaccine. She predicted that if that were the case, there was a chance of a full recovery. Thankfully, after months of difficulty walking, I did completely heal.
I'm sorry about your issues with neuropathy and osteopenia. I wish you all the best.

daisy22 | @daisy22 | Feb 25 7:43am

In reply to @ann707 "Has anyone who already has PN take any osteoporosis drug find an increase of their PN..." + (show)

I was put on OTC calcium for osteoporosis and stopped it along with cholesterol med and vitamin B. Things have been better but still issues sometimes. I just read reputable web sites and eliminated each one and see how it went.

mdamiani57 | @mdamiani57 | Mar 1 10:07am

In reply to @detc "Thank you for your input and the link you provided. I looked at the study and..." + (show)

Mine started after a Flu shot in 2016 I've read where vaccines can confuse the immune system but who knows.

detc | @detc | Mar 1 10:50am

In reply to @mdamiani57 "Mine started after a Flu shot in 2016 I've read where vaccines can confuse the immune..." + (show)

Thank you for that information. I wish you well.

dhamil | @dhamil | Nov 28 8:12am

In reply to @mdamiani57 "Me too been on both for a few years Gabapentin for nerve pain doesn't help much..." + (show)

Interested in what gene would that be? And what was the test that you had done to be diagnosed? Glad you found your problem and are able to address it.

mdamiani57 | @mdamiani57 | Nov 28 12:04pm

In reply to @dhamil "Interested in what gene would that be? And what was the test that you had done..." + (show)

Doctors ran a test for it he said i do have that gene I'd have to look it up but just do a google search for it

texgal57 | @texgal57 | Nov 28 8:41pm

In reply to @johnbishop "I'm not on any osteoporosis medications but I do have neuropathy. Hopefully others with experience can..." + (show)

I also am curious how they diagnosed the Covid neuropathy?

I have neuropathy and was on Actonel many years before neuropathy reared its ugly head. I don't feel it's related. Recently, I had another NCV and EMG testing done. That doctor told me "There's usually 2 causes for neuropathy, diabetes and we don't know. I fall in the latter.

mdamiani57 | @mdamiani57 | Nov 29 6:26am

In reply to @mdamiani57 "Doctors ran a test for it he said i do have that gene I'd have to..." + (show)

Mutations in GIF, as well as in the CUBN and AMN genes have all been identified as causes for various vitamin B12 absorption deficiency syndromes. Early diagnosis and vitamin B12 administration by a medical professional is needed for those carrying these mutations.