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Do you have degenerative cervical spondylitic myelopathy?

Posted by dlydailyhope @dlydailyhope, Feb 24 7:40am

Has anyone had any good treatments for cervical spondylitic myelopathy caused by congenital stenosis and degenerative disc disease and spondylitis above and beyond ACDF surgery? I had ACDF surgery in 2022 and continue to suffer a constellation of symptoms throughout my body which is really decreasing my quality of life and ability to work/function. I am a 54 year old single parent to a 14 year old son. I’m his sole provider and caregiver and worry about my declining health. Any suggestions?

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windyshores | @windyshores | Feb 24 9:28am

I have this diagnosis but have not had surgery. My PT does ultrasound and massage which helps temporarily. I have found tai chi helpful. Sometimes I take baclofen or even Klonpin since I can't take other meds. I get it with the parenting and concerns about functioning and hope someone has better suggestions than I can offer.

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kjfrench0 | @kjfrench0 | Feb 25 9:23am

I had a pcdf in August of last year at Mayo in Rochester. It was a C2-T2 fusion performed by Dr. Flanagan and team. It has been a life changing experience for me. I am still recovering but most of my symptoms have gone away. I highly recommend you go to Dr. Flanagan. It is a very difficult recovery but I can say with confidence that it saved my life.

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Mentor
Jennifer, Volunteer Mentor | @jenniferhunter | Feb 25 11:06am
In reply to @kjfrench0 "I had a pcdf in August of last year at Mayo in Rochester. It was a..." + (show)
@kjfrench0

I had a pcdf in August of last year at Mayo in Rochester. It was a C2-T2 fusion performed by Dr. Flanagan and team. It has been a life changing experience for me. I am still recovering but most of my symptoms have gone away. I highly recommend you go to Dr. Flanagan. It is a very difficult recovery but I can say with confidence that it saved my life.

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@kjfrench0 I’m glad to hear that your surgery was life changing in a good way. I am a Mayo cervical spine surgery patient too and that changed my life. Best wishes for continued healing.

Your surgery was multi level and I can only imagine how much it affected you. My surgery was just a single level that involved regaining the coordination in my arms. Gratitude sure does help when you have to get through something like this. I’m glad Dr. Flannigan could help.

Jennifer

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