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Anyone been diagnosed with Radiation Proctitis?

Cancer: Managing Symptoms | Last Active: Dec 9 8:02pm | Replies (9)
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@again2

Just came upon info that radiation enteritis is what I have been having. It has been off and on for sometime but now has reached the point of too much to handle. Stomach pain, gas,fecal incontinence, incredibly sore butt. Have an appt with oncologist on Wed. He will most likely tell me to see a gastroenterologist. Doctors are quick to pass me off to somebody else.
Any advice in the meantime that will help besides the fiber things no dairy,etc?

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Replies to "Just came upon info that radiation enteritis is what I have been having. It has been..."
Colleen Young, Connect Director | @colleenyoung | Feb 29 9:13pm

@again2, you might be interested in this related discussion:
- Anyone have radiation enteritis, inflammation of your small intestine?
https://connect.mayoclinic.org/discussion/radiation-enteritis/
How did the appointment with the oncologist go?

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gently | @gently | Mar 3 2:27pm

Yes, but you need a gastroenterologist. They will perform a partial colonoscopy anoscopy or rectoscopy and document the bleeding.
This link "Treatment of chronic radiation proctopathy with radiofrequency ablation," is interesting. I had a lengthy search finding a practitioner. You have to be sure they are using the halo 90 catheter. The depth of the ablation is 0.1 to 1mm which allows for re-epililialization of the squamous cell layer. The catheter looks like the tiniest of fly swatters.

Hyperbaric oxygen therapy can also be successful. The trouble is that it's 2 hours a day for 40 sessions. Some injuries require 90 session.
There are other palliaitive ( useless from my experience) meds Rawassa and Sulfacrate.
Best wishes.

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