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Anyone out there diagnosed with Pudendal Neuralgia?
Chronic Pain | Last Active: Oct 14 2:50pm | Replies (200)Comment receiving replies
I am interested in how you were diagnosed with equina syndrome. I have read extensively and have watched all the Utube videos. I possibly have pudendal neuralgia also. My past has involved some spine surgery, most lately a process performed by a neurologist in Little Rock, Ark. known as a Vari Lift Procedure. About that time I began to be diagnosed as OAB as I was peeing in my pants. I am a 84 year old male and all of my vitals are within norms. My first encounter with a problem related to the fact that sitting down was painful on my right side. I had a lot of procedures to try to correct that. I just deal with it and know how to avoid pain. I am very interested to know how cauda aquina was diagnosed and how it has affected your life. There are some very scary reports out there about this condition. Thanks in advance, Jerry.
Replies to "I am interested in how you were diagnosed with equina syndrome. I have read extensively and..."
my Cauda Equina problem was NOT diagnosed by the neurosurgeon and other doctors who i saw for 20 years. It was seen by the orthosurgeon (head of UCSD!) the Neurosurgeon said he wouldn't do surgery until my foot dropped and I pooed myself. He sent me to Orthopedic surgern when he was done wasting his time with me. The ortho surgeon did an xray in his office and showed me where the disc fell out completely and the vertebrates grafted together squishing the nerve roots. I had NO PAIN when this happened. I wondered where the pain went! The nerves died! He offered immediate surgery. I said go-for-it! and away we went! (L3, 4 and 5!) Best thing I ever did. Now the bones around it are giving me more nerve pains so I will have to deal with that shortly. Find a good orthopedic surgeon is what I tell everyone!
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I was fortunate to find a neurosurgeon at the University of Washington who knows how to read MRIs very well. All other doctors had missed it. Previously, I had been treated by many doctors who did not recognize the symptoms. I did not know when I had to use the bathroom and over a summer became incontinent. I started using a walker because I was having great difficulty lifting my legs when walking. When I saw an orthopedist who specializes in spines, I could not rise from a chair or balance on two feet. He referred me to the UW, which took several months. During the interim, I had a month and a half of no symptoms at all. Then I suddenly got so bad I needed a wheelchair (one leg would not propel ahead of the other leg) and was wearing diapers full time. I could only pee standing up (I am a female). When I saw the neurosurgeon, he scheduled me that week for a 14 hour surgery. I walked normally the night after surgery. I just saw the neurosurgeon in December with this difficulty rising from a chair and buttocks going numb but painful, but he did not suspect cauda equina because I am still continent. That seems to be the most important criteria. I walk one or two hours a day so I have the necessary muscles.