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DiscussionWant to connect with people Diagnosed with Crohn's at an older age
Digestive Health | Last Active: Nov 17 1:50pm | Replies (17)Comment receiving replies
Replies to "Hello, I’m new on here, and very grateful The Mayo Clinic has this site to connect..."
Wow, my Gastro, after telling me that if I didn't choose one of the 3 options (infusion, shots, meds) I would DIE. What he didn't tell me is there is a list of foods to be cautious of?? I'm reading that most of the group has diarrhea, I don't, but I have been constipated most of my life until I went on Miralax daily. And as he gave me my subtle diagnosis, he told me to go off my arthritis meds asap! So now I have joint pain and stomach issues. This is like a double edged sword! Oh and best of all, when I had my routine colonoscopy 7 years ago, Doc said I never needed another one as long as I lived. Fast forward 7 years and I'm told to get one, my Gastro doc of 35 years had retired 2 weeks prior and I was give this new doc with no bedside, matter of fact manners!
I have learn recently when I was signing up to a trial research for new medication for Crohns that this disease also cause join pain , and lots of other parts of your body .
My gastro is excellent suggesting other meds and the last one was Rinvoq because I am very sensitive to side effects after my 3rd bottle I was recommended to stop , my doctor was disappointed but I could tell the difference no urgencies , no diarrhea, and last January 23rd I went to full colonoscopy which confirmed what I had in my heart my Crohns was finally quiet , and I am no longer taking any medication at all .
My life was upside down wi the Crohns stress was at high level which makes even worse for the disease.
I am a true believer that JESUS can and will heal so after lots of prayers , tears to be delivered from I have finally at terms that my prayers and decision to change my lifestyle, letting go of things that isn’t important in life , taking different approaches to daily activities etc caring for my 97 years old mother , my husband 87 , so at 65 I am feeling good about my changes and blessings.
Last Saturday I began to bleed a lot which results in 2 trips to ER and end up at hospital until yesterday after my gastro that was at the hospital required just a sigmoidoscopy confirmed again my Crohns is just well as could be , and my bleeding stoped and was caused by diverticulitis but I am home recovering.
So I would recommend talk to your doctor about this medication and give a try , Remicade infusions was very good at the beginning as well .
Please check your emotional health and make changes on the outlook of life what is more important, food is another thing to watch which triggers your Crohns , I was recommended by Crohns NP to take Vitamin D3 , B12 and gummies multi vitamins forever thing due to where my Crohns is and lack of nutrition enough in my body through food intake .
Out lives is very important we are the only ones that can make changes I did I am very happy .
Hope the best and don’t allow the disease to take over your life ! Luci .