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Neuropathy pills: How to avoid scams?

Neuropathy | Last Active: Dec 5 7:41pm | Replies (75)

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@gc45

Having neuropathy for 15 years now and tried everything, can hardly walk now using my canes whereever I go. I feel nothing works much at all. Supplements are mostly a scam in my opinion after taking every one making claims that just are not trueI, they just want our money is all. If something does pop up, and works well, our doctors will know very quickly, having many patients suffering as I do..
One thing, I wear foot warmers in cold weather, anything colder than about 70 degrees and it does help as my feet are in that freezing state most all the time.
2nd thing, I also take Gabapentin several times each day and between these two items I get by, just enough though that I can sleep at night..

So this is just an opinion, but I feel anyone who takes colesterol meds is at risk for neuropathy. Doctors will not verify this saying they have no evidence but if one looks at what neuropathy is, the loss of the Mylan sheath that is made from our bodies natural colesterol working like an insulator over the nerves, it sort of makes sense. I took heavy does of this Med and within a year I had neuropathy that steadily got worse and worse..The nerves lose this covering that then sends pain signals to the brain..My own therory but there you have it..

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Replies to "Having neuropathy for 15 years now and tried everything, can hardly walk now using my canes..."

Welcome @gc45, Thanks for sharing what has helped you. I too have had that statin discussion with my primary care doctors over the years and chose to work on healthier eating and more exercise to improve my cholesterol numbers. I posted my neuropathy journey in another discussion here - https://connect.mayoclinic.org/comment/310341/.

Have you seen the helpful information on the Foundation for Peripheral Neuropathy website?
--- Living Well: https://www.foundationforpn.org/living-well/

I too took statins for cholesterol for over 15 years and have been dealing with neuropathy for 7 years. I agree with your theory. I got my doctor to switch my medication to Zetia and now Repatha. It is a new change so I don't know yet if neuropathy will improve.

My Neuropathy started with leg aches (thigh to calf something like sciatica nerve pain) waking me up from my nap. Now my feet (actually my ankles) wake me up as they feel frozen - sometimes the heals feel like they are burning up. The funny thing is it mostly occurs when I am laying down and almost nothing when I am walking or standing up) Dr gave me Gabapentin after 2 years of complaining and first gave me Narco 10mg which I was taking when it was just leg pain. Narco stills works best and no real side affects. Anyone have my similar symptoms?