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Diagnosed with PMR 2 1/2 years ago. How do I manage the extreme pain?

Polymyalgia Rheumatica (PMR) | Last Active: Jun 1, 2023 | Replies (86)
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@johnbishop

Hello @carina, Welcome to Mayo Clinic Connect. Thank you for sharing your experience with PMR. It really is great when members with similar symptoms can share their experience and let us know we are not alone. I also have PMR but it's currently in remission. My first occurrence was in 2007 and lasted 3 years at which time I was able to taper off of prednisone. The second occurrence was in 2016 and lasted a year and half before I could taper off of prednisone. I'm not sure what it is about the disease but while it's similar for a lot of us, each of us seem to be affected a little differently. I also have edema in my lower legs and have seen some pitting. I'm 75 now and also have lymphedema which I have to wear compression socks to help with the swelling.

Have you seen a rheumatologist? Thanks again for joining the discussion.

John

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Replies to "Hello @carina, Welcome to Mayo Clinic Connect. Thank you for sharing your experience with PMR. It..."
carina | @carina | Feb 28, 2019

Thanks for the nice Welcome to MCC, John. Sharing experiences improves our health as much as drugs sometimes.

I bought a pair of compression socks just last weekend but got so dazzled and distracted by the range of cool designs that I ended up buying a size too small. I will be getting a larger pair in a few days. As for the Rheumatologist, I haven't yet but will be asking my Dr for a referral the next time I see him, hopefully next week. In my neck of the woods, such an appointment will take 8 months or so.

Thanks again for your interest and support.

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