I had invasive lobular cancer in my right breast, tumor was 3.1 cm with additional nodules around it. Had 1 positive lymph node and one with ITC cells. Left breast invasive ductile cancer with 4 mm tumor. Both cancers were estrogen+, progesterone+ and Her2 -, I had double mastectomy with 7 weeks radiation including boosted radiation for positive margins in right breast. I did not have chemo due to low oncotype scores and no advantage.
I took the hormone blocker arimedix for 18 mos but lost 14% bone mass in my lower spine and hips within that time, memory loss, arthritis in hands, severe insomnia, mood disturbances, depression, etc. so quit the medication. I still see my onccologist but also see an md who is a functional medicine, naturopath as well. I take dozens of natural AI's and do intermittent fast along with rigourous exercise at least for days a week. I had my estrogen levels checked a few days ago and they were 14pg/ml. I contacted my oncologist office and they as I thought the labs were positive but they told me my levels should be 1-3pg/ml. I am worried now. Has anyone else taken the path I have successfully? Anyone had there estradiol checked while on hormone blockers? Any advise would be appreciated...