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Diagnosed with PMR 2 1/2 years ago. How do I manage the extreme pain?
Polymyalgia Rheumatica (PMR) | Last Active: Jun 1, 2023 | Replies (86)Comment receiving replies
Thanks for your reply. I think the doseage of prednisone was because the doctor I saw really doesn’t know what I am experiencing and is just calling it musculoskeletal pain. I am keeping a daily flow sheet of pain, ROM for upper extremities. Etc so I have some data to take with me. I am hoping I can get some better imaging like cat scan or mri to help rule out other issues. I will just have to wait it out. At least I am finding some good info and forums to follow for advice from people who have been through this before. My next appointment is in 3 weeks. Earliest I could get.
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Fingers crossed you find answers and your new doctor listens. It is so exhausting to have to quantify ones pain and to explain over and over again to every doctor where the pain is located and how it affects your daily life. Your spreadsheet is genius!