Thoughts on how chronic pain impacts empathy and compassion

Posted by plo99ca @plo99ca, Feb 20 11:33pm

Chronic pain is awful. I have been dealing with pain in my jaw, teeth and face for more years than I can count. It can make me feel crazy. I assume that I'm like many who deal with chronic pain; it alters my mood and impacts the way that I interact with the world. When pain is present, which unfortunately lately is quite often, I am sullen, anxious, abrupt, and eager to be alone. When I am pain-free, I am more pleasant, fun, and engaging. Since we cannot easily see physical pain in others, it is tough to know when someone is wrestling with it. But I am realizing that the one lesson this chronic pain has taught me is to be more empathetic and compassionate to others who are suffering with pain in some invisible way. Pain makes people do strange things. It may be the person who lashes out verbally or the person who does not say thank you when you hold a door open or the person who won't let you merge on the highway or the rude store clerk...but whoever it is, they are wrestling with something unseen, maybe it's physical pain or maybe it's a different kind of pain they are dealing with, just like I am and perhaps just like you. I am no saint... but I am trying to begin to learn to practice empathy and compassion. When I see you out there struggling with something, I want to say that I understand and you are not alone. I do that by holding open a door for you or saying good morning. It is not easy to always remember to do this, but I try. We are all struggling in some way, aren't we? For me, it helps to know that others understand me and my pain battle, I suspect that I am not alone in this. I will hold the elevator for you and I will let you merge in traffic in front of me anytime. Will you do that for someone else? I hope this helps someone who needs to know that others see their pain and they are not alone.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Absolutely. Allowing oneself to feel is important, and necessary for health. Cannot bottle up. Expressing pain, frustration, anger, whatever feelings had is important to do emotionally.

To deny feelings is to bottle up stress and unhealthy in the face of such hardship.

A shoulder to lean on…to share. Both things can be accomplished; to be both compassionate and kind as well as the frustration and anger at the situation…

Love takes over inevitably. Compassion to know she suffers as well and shoulders such hardship rather than acting out. Where he may not show compassion, you are heard and appreciated.

Personally suffering, knowing it is a cross carried acceptance is key. In the face of succumbing to the indifference, that she may face without carrying resentments that can erode heart and soul.

Embracing the impossible - feeling feelings conforming and doing what is necessary may be under appreciated but her heart is in the right place as the body is not cooperating to not let the soul erode.

What choice do we have?

When we do what we do sacrificing from love it is a little easier to swallow an impossible hardship.

Anger and resentments - feeling them and doing what is needed - to do the impossible, and let it go.

Move on to the next knowing that very difficult near impossible situations occur. Allow oneself to have choice. Feeling backed into a corner where there is seemingly no choice is not empowering.

Accepting a situation and offering particularly devastating hardships embracing the self sacrifice out of love can help diminish such difficulty in the face of such traumatic recurring loss, hardship, self sacrifice.

What choices present? It is not the “or” of the matter. It is accepting ‘both’ finding a way to do so within our hearts and minds can be a means to an end.

What is done may seem thankless. To see it as temporary. It is not forever. Finding another way of looking at a situation may help ease the transitions.

We must somehow learn to live with ourselves to face another day of the same. That is reality.

I lost my father to the disease.

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@seattle579

Being positive, empathetic and compassionate is sometimes easier said than done when you are suffering from chronic pain. We are human after all.

Consider the following sceenerio:
Husband with dementia spills coffee all over the floor. Stands there and doesn't know what to do.
Wife suffering from chronic lower back and sciatica pain and has trouble bending or getting down realizes she has to be the one to do the cleanup with pain and discomfort. And she does it dutifully.
How should wife feel ? Can she remain compassionate and kind or can she allow herself to feel somewhat angry and resentful for being put in such a situation?

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I replied above.

💜

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@seattle579

Being positive, empathetic and compassionate is sometimes easier said than done when you are suffering from chronic pain. We are human after all.

Consider the following sceenerio:
Husband with dementia spills coffee all over the floor. Stands there and doesn't know what to do.
Wife suffering from chronic lower back and sciatica pain and has trouble bending or getting down realizes she has to be the one to do the cleanup with pain and discomfort. And she does it dutifully.
How should wife feel ? Can she remain compassionate and kind or can she allow herself to feel somewhat angry and resentful for being put in such a situation?

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Being grateful that she can still do it despite the pain is one thing to consider when in such a difficult scenario. Not an easy task, but, if possible, keeping the gratefulness uppermost may ease some of the resentment.

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I have finally accepted the fibromyalgia diagnosis, and I find that acceptance is part of the journey. I have noticed that having pain, has caused me to listen to others with empathy. I would never choose this, but I do recognize that it has made me a better, kinder, person.

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@seattle579

Being positive, empathetic and compassionate is sometimes easier said than done when you are suffering from chronic pain. We are human after all.

Consider the following sceenerio:
Husband with dementia spills coffee all over the floor. Stands there and doesn't know what to do.
Wife suffering from chronic lower back and sciatica pain and has trouble bending or getting down realizes she has to be the one to do the cleanup with pain and discomfort. And she does it dutifully.
How should wife feel ? Can she remain compassionate and kind or can she allow herself to feel somewhat angry and resentful for being put in such a situation?

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My wife is 9 months post-back surgery - she had 3 vertebrae fused - and is still recovering. She's actually more active than I, but has been cautioned to stop overdoing things.

I have chronic/constant pain in the lower back, arthritic spurs in both shoulders and a hip that is awaiting replacement. I can't walk without pain. Also cannot take NSAIDs for pain relief.

Yet I do the house cleaning, take our dogs out/clean up messes, all of the kitchen cleanup and do the breakfast and lunch cooking. The only person that is allowed to hurt in our house is her. I have to suck it up and do whatever regardless of my pain.

So, how do I handle this? I remind myself that I'm serving more than my wife - I'm also serving God. It's part of being a husband where men are supposed to love their wives like Christ loves the church - self-sacrifice. One accepts the pain knowing that my reward may not be here on earth, but in the afterlife. That helps with the attitude.

Going off in another direction...
I have also invested in tools that are less painful to use. Example is a cordless Dyson stick vacuum - it's much easier to move about than a traditional vacuum. Also, an O'Cedar spin mop instead of a squeeze mop or a twist mop. Also a Libman dustpan with long handle with broom to minimize bending. I also have a "reacher". This is not a commercial, just useful stuff I've found that works well if you have a painful lower back.

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@rjjacobsen

My wife is 9 months post-back surgery - she had 3 vertebrae fused - and is still recovering. She's actually more active than I, but has been cautioned to stop overdoing things.

I have chronic/constant pain in the lower back, arthritic spurs in both shoulders and a hip that is awaiting replacement. I can't walk without pain. Also cannot take NSAIDs for pain relief.

Yet I do the house cleaning, take our dogs out/clean up messes, all of the kitchen cleanup and do the breakfast and lunch cooking. The only person that is allowed to hurt in our house is her. I have to suck it up and do whatever regardless of my pain.

So, how do I handle this? I remind myself that I'm serving more than my wife - I'm also serving God. It's part of being a husband where men are supposed to love their wives like Christ loves the church - self-sacrifice. One accepts the pain knowing that my reward may not be here on earth, but in the afterlife. That helps with the attitude.

Going off in another direction...
I have also invested in tools that are less painful to use. Example is a cordless Dyson stick vacuum - it's much easier to move about than a traditional vacuum. Also, an O'Cedar spin mop instead of a squeeze mop or a twist mop. Also a Libman dustpan with long handle with broom to minimize bending. I also have a "reacher". This is not a commercial, just useful stuff I've found that works well if you have a painful lower back.

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i'm sorry that you are not allowed to suffer. marriage is a 50/50 deal. granted she's in pain but so are you. everyone has different types of pain. she is negateing your pain. maybe it might not be as severe as hers. nobody knows her pain but her. but to treat yours as less than hers is wrong. i hope it gets better for the both of you. d

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@danny5

i'm sorry that you are not allowed to suffer. marriage is a 50/50 deal. granted she's in pain but so are you. everyone has different types of pain. she is negateing your pain. maybe it might not be as severe as hers. nobody knows her pain but her. but to treat yours as less than hers is wrong. i hope it gets better for the both of you. d

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Thanks for your comment, Danny.

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@danny5

i'm sorry that you are not allowed to suffer. marriage is a 50/50 deal. granted she's in pain but so are you. everyone has different types of pain. she is negateing your pain. maybe it might not be as severe as hers. nobody knows her pain but her. but to treat yours as less than hers is wrong. i hope it gets better for the both of you. d

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Well said.

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True observations. As a physical therapist told me years ago, "If you have a broken arm or leg, people can see the cast and will empathize with you. But when you have chronic pain, they cannot not see it and "begin to think it is all in your head." I went through this for some years with doctors who did not believe there was anything wrong with me. Ended up, after loads of tests, X-rays, a couple of MRIs, that the doctors discovered that I had Polymyalgia Rheumatica which is rare for an afro-american. It originally was diagnosed among European female Caucasians. Unfortunately, I suffered needlessly. As soon as I was diagnosed and treated correctly, I began to heal, had less pain and my overall moods changed. It is so easy to assume that "pain is all in a person's head." In the meantime the person suffers not only with the pain, but the agony of trying to get people (and doctors) to understand the torture that they live with on a daily basis. Let's have more empathy for those who suffer with chronic pain. I hope this helps someone out there that needs more understanding of what they are going through.

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@aos

True observations. As a physical therapist told me years ago, "If you have a broken arm or leg, people can see the cast and will empathize with you. But when you have chronic pain, they cannot not see it and "begin to think it is all in your head." I went through this for some years with doctors who did not believe there was anything wrong with me. Ended up, after loads of tests, X-rays, a couple of MRIs, that the doctors discovered that I had Polymyalgia Rheumatica which is rare for an afro-american. It originally was diagnosed among European female Caucasians. Unfortunately, I suffered needlessly. As soon as I was diagnosed and treated correctly, I began to heal, had less pain and my overall moods changed. It is so easy to assume that "pain is all in a person's head." In the meantime the person suffers not only with the pain, but the agony of trying to get people (and doctors) to understand the torture that they live with on a daily basis. Let's have more empathy for those who suffer with chronic pain. I hope this helps someone out there that needs more understanding of what they are going through.

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so true.

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