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Did anyone have a missed diagnosis of NSCLC?
Lung Cancer | Last Active: Apr 30 10:30am | Replies (82)Comment receiving replies
To be honest we aren't sure yet. We've been tracking it for over 2 years. It hasn't grown much. The assumption is slow growing Adenocarcinoma. Discovered it in July of 2021. 2.6 cm solid with ground glass opacity around it. There are also multiple satellite nodules one of which grew from 6mm to 7mm over the 2 years we've been tracking. The large nodule has not changed in size but the density has increased. The pulmonologist started out not being concerned thinking it may only be scarring from my acid reflux. The last visit he seemed rather concerned. He told me "your 2024 is going to suck". He also added "but once you get through this there is a 90% chance you'll be in the clear". Hope is right about the 90% thing. Just today I got the biopsy scheduled for March 7th. CT guided needle biopsy. We will see from there. Thank you for sharing your story. It seems rather similar to mine so far. Did you need to go through any chemo or other treatment?
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No, I have been lucky so far. Only had that nodule and one small 4mm one in my right upper lung that has never changed. I have my 2nd 6 month scan on March 29th and a praying that all stays well! They took out a segment instead of an entire lobe and said “clear margins and no lymph nodes involved”. I did not have a biopsy before hand. It was confirmed after it was removed and it was tested and confirmed to be Adenocarcinoma. No chemo, radiation or immunotherapy needed. I did have a bronchoscopy and a PET scan. Nothing else “lit up”. Even the nodule itself barely lit. Again, I feel very lucky that it was caught early.