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@jchatchett

I just been diagnosed and they put me on steroids. I just would like to find someone who knows about it or had it a while. I want to kinda know what to expect. Thank you!

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Replies to "I just been diagnosed and they put me on steroids. I just would like to find..."

I was diagnosed with PMR in early 2007 and was on prednisone (20 mg daily) for 3 years until I was finally able to get off of it gradually in 2010 when my PMR went into remission. Prednisone was a magic pill but it does have some side effects - the only one that bothered me was the weight gain. I think it increases your appetite. Unfortunately my PMR reared it's ugly head again about three weeks ago so I recently started back on prednisone. I do think diet may play an important part of autoimmune diseases after reading a book - Wahls Protocol by Dr. Terry Wahls. http://terrywahls.com/about/about-terry-wahls/. I just try to stay close to the basic part of the diet - no gluten, no dairy, no sugar or processed foods. I do fudge a little but I figure any reduction of the gluten, sugar and processed foods is better for you. I'm also dealing with small fiber peripheral neuropathy which was diagnosed in March but I've had more than 15+ years just never bothered to get it diagnosed because I was always told if they find you have nerve damage there's nothing they can do about it. This has been an interesting year and the one thing I have learned is you have to be your own advocate and while there may be no one thing that helps with your symptoms you just need to keep looking at finding something that will work of you. Hoping you are able to get your PMR under control as I know how much it hurts. Good luck!

I know two people who had it and they’re both fine today.