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Help! Positive testimonials required

MAC & Bronchiectasis | Last Active: Mar 8 1:16pm | Replies (55)

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@equanimous

Hi Mary,
I was diagnosed with bronchiectasis about 15 years ago and with MAC just prior to the pandemic. I am choosing not to take the antibiotics due to fear of the side effects. My pulmonologist and I are taking the "wait and see" approach which has been working out, thus far. I nebulize, use an Aerobika device, do airway clearance and use a compression vest daily. I have incorporated these treatments into my daily routine (about 40 min) and it works well with helping me expel mucus from my lungs. I lead a relatively normal lifestyle. I eat a mostly plant based diet, go to the gym 4 times per week and take water aerobics class in an outdoor pool. Most importantly, I do my best in maintaining a positive attitude. One thing worth mentioning is, in the beginning of my illness, I had a very bad cough and a lot of mucus in my lungs, From this group, I learned about Nebulizing with 7% hypertonic saline which made a huge difference. The saline creates an uncomfortable environment for the MAC bacteria and research shows it slows the growth. Airway clearance helps with getting rid of mucus build up. I cough a lot less now and don't have to worry when being out in public. This is a brief rundown of my experience, which I hope sheds a bit of positive light. Everyone is different however. Just know, it is possible to lead a good life despite these conditions. I have learned so much from this support group . Stay with us! I wish you well.

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Replies to "Hi Mary, I was diagnosed with bronchiectasis about 15 years ago and with MAC just prior..."

Have you been nebulizing 7% since 15 years ago or during pandemic? I can't tolerate 7% and even 3% irritates me. I produce so much mucus every day. (2 tablespoons yellow/green ) .