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Mac + lung cavity

MAC & Bronchiectasis | Last Active: Mar 3 9:50pm | Replies (128)

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@blixtentoo

I think we've talked before and you mentioned that you tried to take Arikayce for 4 months but you didn't tolerate it well. I've had one dose so far which left me short of breath for days. So the doctor said to wait a week then try again. i have COPD and Arikayce can worsen COPD. I'm wondering if you could share your reasons for not continuing with Arikayce. I understand everyone is different but I'm nearly 80 years old and I just fear that going down this path (of Arikayce) is going to take such a toll on me it won't be worth it. On the other hand I'm scare not to take it. I'm exhausted just thinking about it. Any thing you feel like sharing would be helpful. And I know everyone must make their own decision.

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Replies to "I think we've talked before and you mentioned that you tried to take Arikayce for 4..."

At first it was like vaping, no problem. Then a series of headaches and tinnitus. Coughing continually increased each week, by month 5, I had to stop the daily 14 minute treatment somewhere between 7-10 minutes due to heavy unmanageable coughing. With no guidance on reduced dosages, my pulminologist had me stop. I would have stopped anyways.