Connect
← Return to CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)
Discussion
CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)
Autoimmune Diseases | Last Active: Oct 13 3:46pm | Replies (312)Comment receiving replies
Testing for protein in the CSF is key for diagnosing GBS and CIDP. So the spinal tap is key. It was one of the first indicators of my diagnosis even though all other tests showed normal results at that time. A few years later those tests confirmed CIDP as the symptoms had progressed.
You may find additional help with the GBS CIDP Foundation and the Calgary Neuropathy Support group.
Where are you located ? Assume in the US?
Replies to "Testing for protein in the CSF is key for diagnosing GBS and CIDP. So the spinal..."
Connect
My first spinal tap about 8 yrs ago showed that my protein level was 4x the normal amt.
Next one about 2 yrs later still showed elevated protein but only twice the normal amt.
I’ve been diagnosed with CIDP and tried IVIG infusions every 3 rd week for 2 days but I felt nothing different after 8 mos of infusions,so I stopped them.