Can chronic itching be caused by Neuropathy

Every time I check in this group another supposedly (by me) random element of my life ties in with sfn. I’ve had terrible itchiness on my back for the past four years. My dermatologist has no comment or suggestions for helping it. Thanks for informing me that this could be another part of the neuropathy…..now I’ll go in search of the suggested helps for the problem.

I have small fiber neuropathology and terrible Sjogrens disease and dryness. It’s awful. A specialist at Mayo just added EpiCeram. Controlled Release skin barrier Emulsion. RX Only. It is helping calm the awful itching for a little while. Please ask your Doctor about it. It’s the first cream that has even calmed the itching a bit.

@dancing1 @ebero I was at Mayo last week and my dermatologist there prescribed Gabapentin 3 times a day for relief. My itchiness is primarily facial, ie. nose, eyes, ears, scalp, etc. Looking briefly online, I found a bottle of EpiCeram for $26K or discounted by a coupon from WebMD RX for over $14K. I am not completely cured with Gabapentin thus far, but it is a satisfying start at $12/month.

Good evening @ebero. Perhaps you haven't seen the information on Connect about "Dupixent", It is a total solution for what I call the "neuropathic itch". To read more about this medication on Connect....just place the word "Dupixent" in quotes in the Search bar at the top of this screen. If you are interested in additional information, just send me a message.

I also never leave home without a tube of "Dermeleve". My dermatologist recommended this OTC cream. You can order it online at http://www.dermeleve.com. It lasts about 8 hours. Last month they introduced a Dermeleve shampoo for scalp itch. I ordered it right away and hope it arrives this weekend.

May you be free of suffering from the "itch".
Chris

Thanks! I would love to not constantly be trying to scratch the middle of my back, right where I can’t reach, haha. I’ll check it out.

This is helpful. I have developed a subdermal itch about a month ago and believe it is linked to my peripheral neuropathy, It is worse at night and on my own, I realized the gabapentin I take for night time leg issues resolves the itching until morning. Benadryl does not work. Occasionally I will try a combo of pepcid and zyrtec 10 mg. Was advised by urgicare doctor I saw for a rash (different from the itching problem) and was informed that pepcid and zyrtec taken at same time reinforce the itching relief. I also read that combo is helpful for interstitial cystitis. Go figure on that one.

Surely you're not paying $26,000.00 per bottle? "K" usually means thousands.

Watch Out for Gabapentin..known to increase PN. I quizzed my neurologist about it and his response: “oh…it’s like Tylenol for a headache”. this was very upsetting and an example of Pharma-based symptom treating only….with major side effects, and not addressing the cause. I’ve experienced some itching/skin crawling, primarily in the evenings….after eating inflammatory foods (sugars, alcohol, bread, pasta, etc. ). Extreme lifestyle changes got mine under control: Keto/Intermittent Fasting. Youtube: Dr. Berg, and others.

Yes it can ich like he'll at times. I have heard that an ich can be considered a low level pain response of the body. I have SFN and I know that feeling. I have not found a good treatment yet. I take Lyrica and have a medical marijuana card in my state.

Doctor said I had PN old me to do IVIG After 5 days of infusions developed rash all over body. Dermatologist said i had scabies Test negative pointed out to him that a not too uncommon reaction to IVIG is severe excema now on DUPIXENT for nine months np more IVIG for me