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DiscussionHas anyone gone to Mayo Clinic to see a CFS specialist?
Visiting Mayo Clinic | Last Active: Sep 20 2:25pm | Replies (26)Comment receiving replies
Replies to "Thank you for your time and response. Would you please tell me where your daughter was..."
So my daughter, in 2012 got very sick returning from Belize, and lived in Florida at the time. I dont remember how she was diagnosed, but she was a patient of a well known researcher for awhile, Nancy Klimas. There are illnesses triggered by serious vial infections and I think this was one. They did alot of blood tests, but really it was her fatigue that probably nailed it. She was given various meds, one of which damaged her vagus nerve and led to gastroporesis. I remember in 2016 she was forced to spend time laying on floor, having no energy. Today she works from home, and is much better, altho she has ongoing muscle pain I believe. I think she once contacted Mayo and was rejected for an appointment. The most you can do I think is pace yourself. There is more research now fortunately, but no real medical treatment. It is not in your head as is frequently intimated. Do try to have a positive mindset and allow time to recover.