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Diagnosed with PMR 2 1/2 years ago. How do I manage the extreme pain?

Polymyalgia Rheumatica (PMR) | Last Active: Jun 1, 2023 | Replies (86)
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@charlena

My husband has been diagnosed as having polymylagia rheumatica (from symptoms alone, no muscle biopsy has been done to date). He has been prescribed 5 mg. prednisone bid. His doc has wanted him to try and gradually reduce the dosage which he has tried to do but after just one missed dose the pain returns.
He has now been on the prednisone over one year. More recently, he was prescribed Chloroquine, which he took approximately one week and had to discontinue due to side effects. I would like to hear from others on how they were diagnosed with PMR and if anyone else has been on prednisone this long and what other medications have been prescribed. Thank you.

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Replies to "My husband has been diagnosed as having polymylagia rheumatica (from symptoms alone, no muscle biopsy has..."
madge | @madge | Jun 10, 2016

I suddenly developed PMR and was put on 5mg steroids, which worked for a<br>while, but then relapsed and was sent to a consultant who put me on 20mg<br>and then gradually reduced the dosage over a period of a year. This worked<br>well and I am now clear for the past two years T.G. I hope ethis healpful.<br>Good Luck.<br>

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susi451 | @susi451 | Oct 1, 2021

that seems like a very low dose of prednisone for the initial start-up of treatment. I think most people start on 15-20 mg to get complete pain relief and start tritrating down with your doctor's guidance.

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