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GFR dropped 5 more points and I don't know why.

Kidney & Bladder | Last Active: Mar 11 5:21am | Replies (130)

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@jrn57

Same,only lower (47). Nephrologist pulled me off all supplements (was taking a B1, B12, and others recommended by Peripheral Neuropathy “Specialists”), and immediately stopped any NSAIDS (meloxicam for arthritis). Statins, ADD med. reduced water intake to 50 oz (I’m now 165lbs). eGR shot back to 60 within 1 month (which has been normal for me for years. Hope this helps. work with your nephrologist right now, take responsibility for leading and coordinating your “team” of physicians (they don’t do it as a matter of course).

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Replies to "Same,only lower (47). Nephrologist pulled me off all supplements (was taking a B1, B12, and others..."

That’s great. I’m happy for you that yours is stable. I’m off all supplements and never take anything for pain. I’d like to work with a nephrologist but haven’t been able to get an appointment. After losing at least 11 GFR points in 14 months ( they told me it was over 60 but wouldn’t give a number when I asked sixty what), it now 49. I don’t have a team of doctors. After the drop in GFR my doc said it was stable! I’m in FL where we have a shortage of doctors. After the nephrologist’s office saying they’d look at the lab report and call if they thought I needed an appointment, it’s been a week and no one called. I don’t know what to do, but sure would like to know what’s causing this and if there’s a way to slow it down. No one has mentioned reducing water intake or a special diet. All I know about this is what I’ve read on the Internet, because I haven’t been able to get an appointment. I have Medicare and an F supplement which pays everything, so insurance shouldn’t be the problem.