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DiscussionGoing to Mayo Clinic EDS Florida
Visiting Mayo Clinic | Last Active: Feb 27 8:43pm | Replies (20)Comment receiving replies
Replies to "A year I can’t wait a year I’m really sick losing weight and other symptom"
I understand… The wait time may be shorter now. Last May, they added a new provider so they could see additional patients.
Unfortunately, at least in my experience (and I tried for years to get evaluated), to get specifically into an EDS Clinic if that’s you goal, the wait time is at least a year and usually more. When they told me the average wait was a year, that actually sounded great to me because I met encountering closed wait lists or wait times if 18 months and more.
I live in Illinois, and closest EDS Clinic to me is at Indiana University and the wait list was two years, but then they stopped accepting patients suspected of hyper mobile EDS (the most common version).
If you suspect you have an autoimmune condition and not EDS or hypermobility specifically, have you thought about self-referring to Mayo or asking your doctor to submit a referral? Or depending on where you live, you may be able to get in sooner at an academic medical center close to you, so that you can get things started before you’re seen at Mayo, if you haven’t done so yet.