I requested a recommendation from the Pyronies specialist and was told something like, we don't do urology, you have to call urology for an appointment.
I was very happy with my care and direction in.the pyronies visit. And was surprised I couldn't get a referral for my urology issues.
.I was less than impressed with the Pyronies specialist I saw at Northwestern in Illinois.
I'm not sure who to ask for a reference from there.
I was very happy with my urologist Dr. Dan Dammrich at Northwestern. Northwestern. I thought I messaged him for a referral. I'll have to check if he ever replied.
Since the Multiple Myeloma specialist at Mayo didn't seem to want to be involved in my treatment for that I switched to St. Louis.
I might check there for a urologist.
I really don't know what to do to help myself.
So far giving up and living with it hasn't been working out so well.
I don't trust my local Drs. Or any drs. Much. I was in the hospital for 4 days being treated for muscle spasms when I had 4 badly broken ribs. I clunked when I walked. You shouldn't ought to clunk when you walk.
They never looked at the X-rays they ordered. Stevie Wonder could have seen the broken ribs in those pictures.
At Mayo my shortness of breath was diagnosed as asthma.
A nurse told me that asthma was not my problem. I had very minor asthma.
I requested more testing. Some asshole walked in the room and said, "I've reviewed your records, You have asthma and walked out."
I wasted 20 hours of driving for that I was undiagnosed for years.
My issue was heart related. Possibly in combination with MGUS or smoldering Myeloma.
I've had many bad reactions to procedures and am scared to do anything but live with what I have.
I've been kept overnight for several procedures that were supposed to be outpatient.
I had a reaction to a catheter that left me numb for a very long time. I'm still not right.
I should have sued.
I got absolutely no help from any medical so-called professional on the issue.
Have you considered seeing a physiatrist? They generally look at the bigger picture, rather than focusing on the one thing that is a specialty. Worth a try. If you can, look up the doctors online and read their reviews. Maybe a doctor you trust would steer you to the best one.
You have quite a history. It might help the doctor if you wrote down as much of your history as you can, with any dates you remember, and the things the various doctors said about what they thought was wrong.
Sounds like you need to press on until you find a doctor you can connect with.
Jim