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MAC & Bronchiectasis | Last Active: Mar 8 1:16pm | Replies (55)Comment receiving replies
Replies to "Mary, I am no "Suzy Sunshine" but I can say with confidence that you can have..."
@sueinmn Thank you very much Sue. I need to metabolize this condition. It’s difficult to accept to live in a chronic condition. I don’t even know if I will tolerate the therapy, if it will be efficacious at least in the middle term…there are so many scaring question… my pneumologist have said to me that no one ever really manages to eradicate it… For this reason I wrote, hoping to find that he was wrong…
Always so helpful to read your experiences and suggestions. Thank you Sue.
I just wish I knew why I bring up this white foamy, bubbly "stuff." It can be as much as a quarter cup full, of a red solo cup. All the doctors, including Tyler and NJH, so far have said: " Don't know what that is.." Two ENT's did not see sinus or post nasal drip last year. Working on securing a local ID doctor and a pulmonologist locally who does more than say "come back in 3 or 6 months." Why no facility has a team approach with a respiratory therapist on hand to teach a patient the different types of airway clearance techniques is beyond me. Nor has a pulmonologist even asked "do you know the different methods of doing airway clearance breathing techniques......Thank goodness for this site and the internet to watch helpful suggestions to clear the airways. There is nothing like good actual face to face teaching. I would think it is always better with someone saying: "That right or that's wrong let's try again." Thoughts?
Thanks Sue, I know you are one of many… but you have kept me on the right path of being positive and healthy while dealing with mac and bronchiectasis. Thank you for continuing your very supportive and helpful advice and care. I need reminders every once in a while that this is doable and am not alone.
Cindy