Hello @foonfoon65
I had the exact same experience picking up my script for Tobi at the Pharmacy. I use a pharmacy located across the street from our hospital with a very knowledgeable pharmacist. He said you can either pay the $$$$ or I can give you a prescription for Tobramycin Injectable and use it as an inhaled treatment. He showed me how to break it down and gave me the "pull" syringes. It cost me $ Nothing with my insurance. This is what I read they do in hospitals to keep expenses down. There are many articles on the internet about substituting injectable Toramycin for Tobi. As far as I can determine, it seems safe and efficient. You might call your pharmacist and see if they will do this for you....but First, please go on-line and read up.
I did the Tobramycin along with Cipro. Was given a month-long Tobi script with the 10 day Cipro script. I was only able to do the Tobramycin for 2 weeks and that was pushing it. It made my coughing awful, my trachea was raw and I was miserable. I went back to my Dr and told him I had substituted the injectable for the Tobi and he just kind of shrugged. I also went to the pharmacist and asked if the coughing and throat issue was due to using a generic form and that I was only able to tolerate 2 weeks. He laughed and said that was pretty darn good in his experience.
Anyway....I finished the two back in mid Sept. and I still feel great. Hope this helps...I am happy to answer any questions and you are welcome to PM me. Read up on it and I think you will feel comfortable with it. (Maybe not) ? That is my only suggestion for getting the price down....and it gets down to Zero. I splurged and got my pharmacist a gift card dinner to his favorite restaurant as a thank you.
Good luck. PS...maybe a call to your Dr to ask him to prescribe the injectable to be used as a substitution for the Tobi might help and I would imagine would make you more comfortable.
Best Wishes,
Kate