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PN: From Anger to Acceptance

Neuropathy | Last Active: Aug 3 9:51pm | Replies (83)

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@michhino

I'm 55. I am a diabetic since 2017 and diabetic neuropathy started with my feet (tingling, numb, painful nerve strikes, etc..) in 2018 which nerve damages eventually spread into my calves and thighs plus waist. Until this day(2023), I have been dealing with incurable, unmanaged, uncontrollable diabetes II and painful lower body neuropathy (PM) and not mention ED….

After all the doctors, neurologist, emergency rooms, hospitals, etc.. , plus prescribed medications (pre-gabapentin/gabapentin, Juniva, Metformin, Duloxetine, etc.. I awfully regret to spend thousands and thousands of dollars (Out of Pocket and/or Insurance)…

After 5 years with such conditions and sad experiences, you DO NOT want the neuropathy (PN-nerve damage) to quickly spread and affect your entire feet, calves, thighs, waist and hands as it is an extremely terrible feeling along with very poor state of mind, anxiety, stress, nervousness with daily activities, etc.. And sadly, impotent for the last 4 years and specialized ED doctor(s) want 20K+ to make you believe that they can help with it. I declined!

Needless to say, REAL answer for these serious mental and health complications and conditions were experienced as "NO CURE" !

The only solution was to amputate feet, legs, and hands. I could not live with myself with such decision. I will continue to endure and suffer which I have accepted to convince mind it is a part of the remaining style way of my life. Most importantly, my disability claim was also denied with lawyers and by judge. I was devastated!!!

I am attempting to remain positive with the job market. Currently, unemployed. I adopted a 4 year dog (German Shepherd) to help encourage walking at least 4 times a week which helps body, muscles, and aggravating feet and leg nerves and simply ignore the pain.

My dog is amazing! I seriously regret not adopting dog long ago.

My advice is to eat healthy, "exercise', and most definitely "Save your Money"… and maybe consider a dog to enlighten your spirits!

My prayers are with you …

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Replies to "I'm 55. I am a diabetic since 2017 and diabetic neuropathy started with my feet (tingling,..."

@michhino
Unfortunately, I relate to the ED. Have you tried viagra etc?
If the pills don't work there are injections. I like many others use Trimix. Works great.
Jake

Hello, michhino (@michhino)

I delayed replying because I didn’t know what to say. It’s good––and powerfully sobering––to read posts like yours. I tend to be a Rah! Rah! kind of guy: “Up and at ‘em! Go for another mile! Cycle another twenty! Stop complaining! It can’t hurt that much!” Fellows who, like me, are blessed with a PN that doesn’t come with pain need to be reminded that others of us have neuropathies that DO hurt––and hurt one heck of a lot! It may seem odd to say thank you for your post, but “Thank you.” I’m a more aware person today for your having taken the time to write it.

Ray (@ray666)

Are you aware of the work a company called Winsantor is doing for neuropathy?
https://wefunder.com/winsantor/updates
Here's a video they did after one of their trials with DPN patients.