Seeking support, new to this nightmare

Have you had a Lyme test? Western Blot is better than Elisa. In my experience, that is one possibility, if your doc agrees.

Have they prescribed any kind of meds to help reduce the pain and help you sleep. I can't imagine that they have not done so. I am on gabapentin and diazepam. They help me get through the night.

My goodness that was an abrupt onset of symptoms. I sure do hope they can figure it out and help you. Sending well wishes your way. Did you see primary too?

Welcome @ehope, It's definitely OK to rant. Most all of us reach that point at one time or another in our journey with pain. It sounds like it's only the one foot/leg that has the burning and pain. Is it just the one foot with the pain? With not having a diagnosis and still in pain, have you thought about getting a second opinion?

I'm going to post this is a couple of places since I don't know which will be the most help. I was diagnosed with idiopathic PN a couple of weeks ago. The neurologist at may request said that alpha lipoic acid can help some people. So I gave it a try. Still early days and I'm trying half the dose he suggested to see how I adjust to it. The really strange thing I have found is my urine has a sweet smell. I stopped the lipoic acid and it went away. Started the lipoic acid it came back. Anyone have any idea what that is all about. Have any of you experienced the same thing?
Any input would be appreciated.

Wow, thank you everyone for responding so quickly. It was very abrupt and reading that neuropathy has no cure is not something I can wrap my head around. I was not diagnosed with it, or anything yet. I have had chronic Lyme and various co-infections and am very in tune with my body. This is not that. I have no desire to take Pharma drugs for symptoms, as I do not fare well on them from experience. My primary ordered bloodwork. It started in the leg with the stress fractures only, then it went to both about two weeks later. The other foot is way less severe. There is no opinion as of yet. I do have the stress fractures and those are being tended to, however not causing this severe situation, in my opinion. I am using herbs and energy work to clear my pathways. I take alpha-lipoid and do not have sweet smelling urine, that is a pleasant side-effect! I appreciate all of you sharing your experiences and support! Hope

@ehope, I'm not sure if you have seen this site but the Foundation for Peripheral Neuropathy has a list of complementary and alternative treatments which includes supplements found to help with neuropathy which might be helpful - https://www.foundationforpn.org/wp-content/uploads/2020/08/Complementary-and-Alternative-Treatments-Revised-2020-final.-1.pdf

Here's some possibilities on the topic of urine with a sweet smell.

"Sweet-smelling urine can be a sign of an underlying medical condition or infection. Diabetes, urinary tract infections (UTIs), liver disease, and metabolic disorders can make urine smell sweet. Dehydration, very low-carb diets, vitamin supplements, and some medications can also give urine a sweet scent."
--- Why Urine Smells Sweet: Diabetes, UTIs, Liver Health: https://www.verywellhealth.com/sudden-onset-of-sweet-smelling-urine-5114621

Have you discussed the symptoms of the smell with your doctor?

I would try PQQ and CQ10 supplements- helped stop my progression of PN after 8 years and reduced PN and pain in my hands- please let me know if it helps!

Hi Ehope, sorry that your are going through such pain. Perhaps a neurologist could help or an orthopedist. Even a good GP might be able to shed some light on it. You shouldn't be suffering for so long, ,there must be a treatment that can help...good luck !