Replies to Many similar aspects; treated as BCR. RP at Johns Hopkins Aug 2022 – surgical margins, seminal…

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Prostate Cancer | Last Active: Feb 27 3:58pm | Replies (25)

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@michaelcharles

Many similar aspects; treated as BCR.

RP at Johns Hopkins Aug 2022 - surgical margins, seminal vesicles and lymph nodes clear.
Extraprostatic Extension (EPE) found by Pathology and confirmed Gleason 9.
pT3aN0
1st PSA 90 days postop .19
Referred immediately to Radiation Oncology.
PSMA PET not definitive.
Salvage radiation together with 4 mos ADT completed June 2023.
Whole pelvic region (WPRT) together with pelvic lymph nodes treated.
See SPPORT trial
1st post tx PSA < .02 in Nov.
Coincidentally, 2d uPSA test 2 days ago and anxiously waiting for results today or Friday.
My research similar to yours; .2 - .4/.5 BCR and sweet spot for treatment.
Believe trend is to treat earlier. Absent specific positive PSMA PET scan findings, belief is that residual cancer cells in pelvic floor and/or pelvic lymph nodes.
Best wishes.

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Replies to "Many similar aspects; treated as BCR. RP at Johns Hopkins Aug 2022 - surgical margins, seminal..."

Dave | @cedard | Feb 22 12:13pm

Thanks for your story. I definitely understand the anxiety. PSAitis is what my Urologist refers to it as. Mine keeps telling me that I will suffer effects of radiation because I am young, and its better to wait for PSA to get higher to try and pinpoint via a PSMA test. Naturally, Im thinking if wait to long (say past .4/5) then % chance of metastasis may go up. Also wondering if hormone therapy would actually decrease chance of pinpointing at a later date via PSMA test. Obviously, very subjective decision. Keeping all in prayers.

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