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Chronic Abdominal Pain | Normal Test Results

Chronic Pain | Last Active: Feb 27 8:03pm | Replies (22)
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@jenguin37

Thank you so much for taking the time to respond. I really appreciate you taking the time to share this information with me because in all my research I had not come across this as a possible reason for what I am experiencing. A lot of what I read definitely resonates with what I'm experiencing. I am going to go over this and the other syndrome mentions on this thread called Abdominal Cutaneous Nerve Entrapment with my current surgeon, but if he is not receptive to either then I will definitely be reaching out to a bigger hospital like Mayo or Cleaveland Clinic. I think it's possible I may be dealing with both of these simultaneously. I know something is going on and I am suffering and its definitely time to look outside the box.

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Replies to "Thank you so much for taking the time to respond. I really appreciate you taking the..."
Rachel, Volunteer Mentor | @rwinney | Feb 22 9:08am

You're welcome! Glad to hear you've got some things to process and you're willing to look outside the box. Being our own advocates sometimes is our best option, and following our gut (no pun intended) because we know our bodies best, right?

Here is a link to Mayo Clinic should you choose that route and want to apply:
- http://mayocl.in/1mtmR63

Do you have any large teaching hospitals near you?

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emo | @emo | Feb 24 2:24pm

I was just going to mention ACNES, but you mentioned it here. Another similar/related condition is MALS (Median Arcuate Ligament Syndrome). I considered getting screened for both…I think they require a vascular ultrasound?

But as you mentioned, it would probably be best to seek out a specialist.

Turns out I also have central sensitivity syndrome—it can be triggered by any kind of chronic pain, especially when the original pain can’t get addressed quickly. The good news is addressing the CSS can usually improve symptoms of any other conditions you might have since you’re influencing pain perception.

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